|Hot packs. IV team. All pre-sedation.|
Sedation takes away Lily's control. It takes away my control--the mother who worried about naps and bedtimes and sleep schedules. Suddenly, a mix of sedatives--names I can list like those of my first cousins--are in charge.
Lily used to wake up angry. Even as a baby, her body would be fired with rage. She hated the loss of control--the drugs make her demeanor twisted.
It was as if she was fighting off a demon. I loved to see her fight away the sedation and fight away the brain tumor. It was actually what I wanted to do; but didn't: thrash and yell and scream. The louder she was the sooner we were allowed to leave; the sooner we could escape.
Now, Lily sleeps after sedation. They give her more drugs. We've learned to let her sleep it off longer. It means we stay trapped in purgatory for a little while longer. It means she wakes up a little less angry.
But, no matter how long she sleeps. Lily always wakes up. It is the waking-up that I have to cling to. It is the always that I have to hold on to.
Tomorrow, Lily will wake up; like she always does and we will escape, again.